So they have finally found a vein pressing on the root of the Trigeminal nerve. My battle is to now try and get surgery but whilst I’m having huge issues with my countries medical health care system I decided to take action and email the shit out of everyone I can think of about every little thing wrong with the treatment for Trigeminal Neuralgia.
Do need to try and keep updating my story but the pain has been really really bad of late and I have responded to this with awful rage if I am out of my comfort zone, ie. Bed. This is soul destroying and so difficult in many different ways. I hope my words reach someone and help them somehow somewhere. You are not alone and this is not your fault. Together we fight 💖💕